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  • A History and Sociology of the Willowbrook State School

    The Willowbrook State School is an important part of the history of disabilities in the United States and is regarded by some as the “ground zero” of the disabilities civil rights movement. This informative text describes in great detail what life was like for the people who lived and worked at Willowbrook and how and why the institution evolved as it did. The focus is primarily on the period before Geraldo Rivera’s sensational television exposé in 1972.

    A History and Sociology of the Willowbrook State School explores a general history of disabilities and institutions and increasingly concentrates on the “medicalization” of disability, which was the impetus for the creation of large-scale institutions. The early history of institutions in New York State, New York City, and Staten Island is adroitly presented as a backdrop that allows the authors to showcase the particulars of Willowbrook itself.

    Beyond historical context, the reader is introduced to the sociology of institutions. Through the use of poignant first-hand observations and testimonials on life at Willowbrook, the authors provide readers a better understanding of the seemingly counterintuitive interpersonal dynamics and interactions that are part and parcel of life and work in institutional settings. 

    You may purchase the e-book version of A History and Sociology of the Willowbrook State School by clicking here

    Year : 2013
    Author : David Goode, Darryl Hill, Jean Reiss and William Bronston

      $30.00

    • A History and Sociology of the Willowbrook State Scho...

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      Year : 2013
      Author : David Goode, Darryl Hill, Jean Reiss and William Bronston

        $30.00

      • A History and Sociology of the Willowbrook State Scho...

        epubThis is an e-book version of A History and Sociology of the Willowbrook State School.
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        Year : 2013
        Author : David Goode, Darryl Hill, Jean Reiss and William Bronston

          $30.00

        • Clinical Judgment, Second Edition

          In 2005, AAIDD published the first edition of Clinical Judgment to assist clinicians in making decisions or recommendations that were of high quality, valid, and precise. This need was becoming increasingly important as the field of intellectual disability was moving to a community-based service delivery system in which the concepts of equity, inclusion, self-determination, and empowerment were merging with the supports paradigm and the self-advocacy movement. Thus, clinicians were being asked to formulate high-stakes decisions and recommendations that frequently required a level of competency that extended beyond their formal training. In this second edition, the authors maintain their focus on the use of clinical judgment in situations involving diagnosis, classification, and planning supports. In addition they have synthesized evaluative input from colleagues and literature-based critiques and have extended their analysis and evaluation of the role of clinical judgment in decision making. 

          You may purchase the e-book version of Clinical Judgment, Second Edition by clicking here




          Year : 2014
          Author : Robert L. Schalock and Ruth Luckasson

            $30.00

          • Clinical Judgment, Second Edition - Mobile

            This is a mobile version of Clinical Judgment.
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             the book description and/or purchase a print edition by clicking here.
            Year : 2014
            Author : Robert L. Schalock and Ruth Luckasson

              $30.00

            • Clinical Judgment, Second Edition E Pub

              epubThis is an e-book version of Clinical Judgment, Second Edition
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              Year : 2014
              Author : Robert L. Schalock and Ruth Luckasson

                $30.00

              • criticalissues front cover

                Critical Issues in Intellectual and Developmental Dis...

                This timely and important publication provides a concise review of what we know about ten key areas in the field of IDD and what that knowledge means for future developments in public policy, research, and practice. Developed as a foundational review of the knowledge base in preparation for the 2015 National Goals conference, the book examines the following areas:

                • Aging, retirement, and end of life
                • Education
                • Employment and economic self-sufficiency
                • Health and wellness
                • Justice
                • Long-term supports and services
                • Self-determination and self-advocacy
                • Social inclusion
                • Supports for families
                • Workforce issues

                This book will be particularly useful to practitioners, policy analysts, researchers, and students. Taken as a whole, this work concisely illustrates the gaps between the existing evidence and what must still be demonstrated, what practices we know to be effective and contemporary strategies for implementing those practices, and where we are and where we aspire to be in our nation’s public policy.


                From The Midwest Book Review:

                "Written especially for aspiring and practicing professionals in education, caregiving, medicine and more, "Critical Issues in Intellectual and Developmental Disabilities" is an impressive compendium of contemporary data. "Critical Issues in Intellectual and Developmental Disabilities" is unreservedly recommended for professional, governmental, NGO, college and university library collections."

                                                                                                                   - Julie Summers 

                You may purchase the e-book version of Critical Issues in Intellectual and Developmental Disabilities: Contemporary Research, Practice, and Policy 
                by clicking here
                Year : 2016
                Author :

                  $30.00

                • critical epub

                  Critical Issues in Intellectual and Developmental Dis...

                  epubThis is an e-book version of Critical Issues in Intellectual and Developmental Disabilities: Contemporary Research, Practice, and Policy. Click here for information about this book. 
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                  Year : 2016
                  Author :

                    $30.00

                  • cross cultural high res front cover

                    Cross-Cultural Quality of Life: Enhancing the Lives o...

                    The second edition of this popular book reflects many of the changes in the field of IDD in the first 15 years of this century, including an increased understanding of the quality-of-life (QOL) concept and the influence it has had on the field. This edition represents the work of 34 contributors, representing 14 countries, who capture the significant role the QOL concept has played in personal involvement and empowerment, self-advocacy, family-related QOL, supports planning, outcomes evaluation, continuous quality improvement, organization transformation, and systems-level change.

                    The sample of cultures in this edition represents a somewhat different sample than that found in the first edition and is amplified by an extensive reference list that presents a broader, more complete view of international QOL work. Chapters from the developing world are included, recognizing the significant challenges faced by many countries. The contributors to this edition include those whose work is familiar and widely published, as well as self-advocates who speak from their own experiences and insights. The chapters in this edition are grouped into the following sections: the culture of QOL, QOL at the microsystem level, QOL at the mesosystem level, QOL at the macrosystem level, and the cross-cultural QOL agenda.  

                    Year : 2016
                    Author : Robert L. Schalock and Kenneth D. Keith, Editors

                      $39.95

                    • CrossCultural epub

                      Cross-Cultural Quality of Life: Enhancing the Lives o...


                      epubThis is an e-book version of Cross-Cultural Quality of Life: Enhancing the Lives of People With Intellectual Disability. 
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                      Year : 2016
                      Author : Robert L. Schalock and Kenneth D. Keith, Editors

                        $39.95

                      • mobile

                        Cross-Cultural Quality of Life: Enhancing the Lives o...

                        This is a mobile version of Cross-Cultural Quality of Life: Enhancing the Lives of People With Intellectual Disability. See the book description and/or purchase a print edition by clicking here.
                        Year : 2016
                        Author : Robert L. Schalock and Kenneth D. Keith, Editors

                          $39.95

                        • Good Blood Bad Blood (E-pub)

                          epubThis is an e-book version of Good Blood Bad Blood.
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                          Year : 2012
                          Author : J. David and Michael L. Wehmeyer

                            $34.95

                          • Good Blood, Bad Blood: Science, Nature, and the Myth ...

                            At the vortex of the American eugenics tragedy was the seemingly sordid tale of a “degenerate” family from rural New Jersey.Published in 1912, The Kallikak Family was a pseudoscientific treatise describing generations of illiterate, poor, and purportedly immoral Kallikak family members who were chronically unemployed, “feebleminded,” criminal, and, in general, perceived asthreats to “racial hygiene.” Psychologist Henry Herbert Goddard invented the pseudonym “Kallikak”—from the Greek words Kallos (beauty) and Kakos (bad)—to illustrate the eugenic belief in the role of nature and heredity as unalterable forces leading to degeneracy, and his tale of the contrasting fates of the disparate Kallikak ancestral lines reigned for decades as seemingly conclusive proof of the hereditary nature of intelligence, feeblemindedness, criminal behavior, and degeneracy. The starting point for Goddard’s moral tale was “Deborah Kallikak,” an inmate at his institution for the feebleminded.
                            Incredibly, as revealed in detail for the first time in Good Blood, Bad Blood: Science, Nature, and the Myth of the Kallikaks, Goddard was completely wrong. No degenerate line descended from the purported Kallikak progenitor. There were only people—some of whom had resources and access to education, others of whom were poor, uneducated, and cast into the cauldron that was urban America at the dawn of the Industrial Age. The pseudonymous “Deborah Kallikak” became the poster child for societal fears regarding immigration, heredity, and racial integration, the flames of which were fanned by a select group of well-educated, upper class, American scientists marching under the banner of the new “science” of eugenics.
                            In the 100 years since publication of The Kallikak Family, the woman Goddard called “Deborah” has remained in the shadows of history, known only by the name forced upon her. Using new source material, Good Blood, Bad Blood tells her story in its entirety—in dramatic, narrative style—for the first time. It is a landmark publication in disability studies, vital to understanding of both this specific American tragedy and the history of efforts to manipulate the human population.

                            You may purchase the e-book version of Good Blood, Bad Blood by clicking here

                            Year : 2012
                            Author : J. David Smith and Michael L. Wehmeyer

                              $34.95

                            • INCL-COVER

                              Inclusion: Special Issue

                               

                              This special issue of the AAIDD journal Inclusion (v3, n4) is drawn from the work of the National Goals in Research, Practice, and Policy conference, held in August 2015. The conference brought together leaders in the field of intellectual and developmental disabilities (IDD) for the purpose of summarizing the current state of knowledge in the field and developing a platform of national goals in research that will have the greatest impact on practice and policy. The articles in this special issue represent the goals developed by the leaders, presenters, and participants in the 10 strands of the conference:

                              • Self-determination and self-advocacy
                              • Social inclusion
                              • Education of children and youth
                              • Employment and economic self-sufficiency
                              • Long-term services and supports
                              • Health and wellness
                              • Justice
                              • Aging: Transitions in health, retirement, and late life
                              • Supporting families across the life course
                              • Workforce to support the health and community lives of people with IDD

                              Each article describes the rationale for the goals and their implications in terms of anticipated effects on policy and practice and improvements in the lives of people with IDD.

                              The co-editors of Inclusion are Dr. Michael Wehmeyer and Dr. Karrie Shogren of the University of Kansas. The co-editors of this special issue are Dr. Amy Hewitt of the University of Minnesota, Dr. Tamar Heller of the University of Illinois at Chicago, and Dr. John Butterworth of the University of Massachusetts Boston. 

                              Year : 2015
                              Author :

                                $21.95

                              • Intellectual Disability: Definition, Classification, ...

                                By Robert L. Schalock, Sharon A. Borthwick-Duffy, Valerie J. Bradley,  Wil H.E. Buntinx, David L. Coulter,  Ellis M. (Pat) Craig, ; Sharon C. Gomez,  Yves Lachapelle, Ruth Luckasson, Alya Reeve,  Karrie A. Shogren,  Martha E. Snell, Scott Spreat, Marc J. Tassé, James R. Thompson,  Miguel A. Verdugo-Alonso,  Michael L. Wehmeyer, and Mark H. Yeager

                                This manual contains the most current and authoritative information and knowledge on intellectual disability, including best practice guidelines on diagnosing and classifying intellectual disability and developing a system of supports for people living with an intellectual disability.  Written by a committee of 18 experts, Intellectual Disability: Definition, Classification, and Systems of Supports (11th edition) is based on seven years of work on: (1) a synthesis of current information and best practices regarding intellectual disability; (2) numerous reviews and critiques of the 10th edition of the AAIDD definition manual; and (3) feedback from the field regarding a series of articles published by the Committee. This is the first official AAIDD definition manual with the terminology “Intellectual Disability.”

                                Featuring Best Practice Guidelines and Discussion for Professionals

                                 Here’s how you can benefit from this best practice manual:  
                                • Learn an authoritative definition and diagnostic system of intellectual disability designed to give you a thorough and step-by-step understanding of all the factors that go into determining intellectual disability.
                                • Consult expert guidelines on critical issues such as the role of assessment in the diagnostic process, challenges faced in quantifying intelligence, evaluating the role of IQ in making a diagnosis, and how to assess adaptive behavior.
                                • Understand key clinical judgment strategies to enhance the validity and precision of a clinician’s decision on the diagnosis of intellectual disability.
                                • Discover the relationship between the AAIDD System and other diagnostic systems.
                                • Read detailed discussions on the 10 dimensions of support areas in a person’s life and various approaches to individualized service planning.
                                • Learn about the unique needs of people with intellectual disability with higher IQs.
                                • Learn how to apply the AAIDD Definition System within special education systems, public policy initiatives, and provider organizations. 
                                You may purchase the e-book version of Intellectual Disability by clicking here

                                Related Title

                                User's Guide
                                This practical User's Guide to the 2010 AAIDD Intellectual Disability: Definition, Classification, and Systems of Supports manual informs clinicians, educators, policy makers, and program managers how to implement the various components of the AAIDD definition system in their specific job settings. The authors discuss the contemporary relevance of the supports-based AAIDD definition in the context of issues ranging from special education practices and IDEA mandates, to diagnosing individuals with higher IQ and conducting retroactive diagnoses. Policy makers and program managers will benefit from discussions on how the supports paradigm can improve quality outcomes, and how the current system incorporates the consensus in the field to utilize a supportsbased approach.

                                Praise for the 11th Edition

                                “The 11th edition of the AAIDD Definition Manual continues our progress in both describing a person with an intellectual disability in several dimensions, not solely based on IQ or Adaptive Behavior, and integrating further the concept of supports into the definition and practice.  Refinements based on an extensive feedback system, both in the field and in peer-reviewed literature are incorporated making the 11th edition the most advanced tool of its kind.” 
                                Steven M. Eidelman, Professor and Co-Director, National Leadership Consortium, University of Delaware
                                 
                                "An excellent, up-to-date reference enthusiastically recommended for college library collections and teh resource shelves of aspiring and practicising psychologists." 
                                Library Bookwatch, February 2010

                                “An indispensable desk-top reference and primer on assessing intellectual disability that includes a compendium of leading practices on structuring effective life-long supports.” 
                                 Renee L. Pietrangelo, CEO, ANCOR

                                Year : 2010
                                Author :

                                  $90.00

                                • Intellectual Disability: Definition, Classification, ...

                                  epubThis is an e-book version of Intellectual Disability.
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                                  Year : 2010
                                  Author :

                                    $90.00

                                  • Maltreatment front cover

                                    Maltreatment of People With Intellectual and Developm...

                                    This comprehensive and compelling work presents research and evidence-based strategies related to the maltreatment of people with IDD across the lifespan. Using the public health framework that moves from surveillance to screening to intervention to policy implications, this volume presents research in a life-course perspective separated into three sections: IDD in Early Life, Adults With IDD, and Interventions for People With IDD. Together  they emphasize the importance of interdisciplinary collaboration to better serve and provide for people with IDD.

                                    Eleven chapters present research, strategies, interventions, and approaches in the key areas involved in the understanding, treatment, and prevention of maltreatment of people with IDD throughout their lives:

                                    • A systematic review of the literature on the association between childhood disability and child maltreatment
                                    • Sexual trauma in children and adolescents with IDD
                                    • Effects of the bullying of youth with IDD
                                    • Heightened social vulnerability among adults with IDD
                                    • Removing reproductive, sexual, and child-rearing rights of women with IDD
                                    • Relationships and social networks among a sample of mothers with IDD
                                    • Victimization risk of older adults with ID manifesting later in life
                                    • Prevention of maltreatment of adults with IDD
                                    • Systemic change in services for parents with intellectual and other cognitive disabilities
                                    • Post-injury monitoring of abusive head trauma
                                    • Discriminatory killing and execution of people with IDD
                                    Designed for policymakers, researchers, clinicians, and students at the undergraduate and graduate levels, this resource provides an in-depth look at the knowledge base in addressing the maltreatment of these vulnerable populations.

                                    Year : 2016
                                    Author : John R. Lutzker, Kate Guastaferro, and Megan L. Benka-Coker, Editors

                                      $39.95

                                    • Negotiating the Social Borderlands: Portraits of Youn...

                                      Negotiating the Social Borderlands: Portraits of Young People with Disabilities and Their Struggles for Positive Relationships provides readers with narratives of the lives of three young people with significant disabilities.
                                      The author uses portraiture to narrate the stories of three young people and to capture the myriad dimensions of each unique individual. These portraits expose a balance between empirical description and aesthetic expression and provide a singular view into the nuances and complexities of each young person’s life, while depicting their unique social contexts and how they fit within those milieux.
                                      Never losing sight of the dimensions of the selves of these notable young people and the contexts in which they exist, the author presents the qualitative techniques of inquiry she used to examine the complexities involved in the co-constructions of meaning among the young people and their communication partners. Without wavering, she explores their deep relationships and the contexts where positive reciprocal relationships developed between young people with disabilities and nondisabled people and how these relationships evolved from the perspectives of the participants. 
                                      Negotiating the Social Borderlands, an unapologeticpresentation of a remarkable set of portrait narratives, is written for a broad audience and, thus, offers an inherently complex and sensitive portrayal of three personal stories in which a variety of contextualized issues can be examined and discussed in light of each readers’ practices, policies, and perspectives.

                                      You may purchase the e-book version of Negotiating the Social Borderlands by clicking here
                                      Year : 2013
                                      Author : Janet Sauer

                                        $30.00

                                      • Negotiating the Social Borderlands: Portraits of Youn...

                                        epubThis is an e-book version of Negotiating the Social Borderlands.
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                                        Year : 2013
                                        Author : Janet Sauer

                                          $30.00

                                        • People Planning Ahead: Communicating Healthcare and E...

                                          People Planning Ahead provides a comprehensive and structured way to ensure that loved ones receive care respecting their wishes and conforming to their personal, cultural, and religious beliefs during times of chronic and terminal illness, or severe disability. The book and the accompanying CD-ROM are designed to capture detailed information on an individual;from basic health information and preferences on blood transfusions to the individual's traits and personality types. Successful application of information gathered through People Planning Ahead ensures that individuals proceed through care and end-of-life stages with minimum adversity and maximum dignity.

                                          Features

                                          • Provides a structured way for planners to gather and organize information on a person's values, goals, and life and turn it into a detailed life plan.
                                          • Contains guidelines on planning stages of lives of an illness.
                                          • Includes plain language definitions of such terms as living wills, advance directives, competency, and capacity as well as other insights into end-of-life issues.
                                          • Electronic questionnaires on accompanying CD-ROM make it easy to store and archive essential information.
                                          • Assists a person no matter where they may be on the wellness continuum, from healthy adults to those diagnosed with terminal illnesses. 
                                          • Comes with customized training workshops on end-of-life and person-centered planning.

                                          Benefits

                                          • Provides a structured way for planners to gather and organize information on a person's values, goals, and life and turn it into a detailed life plan.
                                          • Ensures that the clearest and most detailed portfolio of the individual is available for families and professionals to use as a reference for future contingencies.
                                          • Detailed planning forms on CD-ROM offer instructive and step-by-step examples on how to use information in real-life situations; electronic format makes it easy to store and archive information.
                                          • Based on the principles of Essential Lifestyle Planning, an approach focused on maintaining the independence and autonomy of a person by acquiring information about their life preferences

                                          Who Can Use This Book

                                          People Planning Ahead follows the person-centered model to help the family member or professional guide an individual on his or her own personal journey to consider and define what is most important. The manual is written for:

                                          • Disability professionals such as clinical coordinators or case managers in state agencies, institutions, or assisted living facilities
                                          • Geriatric care managers in hospitals, departments of aging, or independent homes
                                          • Social workers in hospices and other palliative care services
                                          • Family members

                                          Praise

                                          "In striving to protect an individual’s right to die well, the People Planning Ahead workbook results in a succinct summary of what makes each person unique and what matters to him or her most about living. As a practicing physician, I consider this manual to be an invaluable for assessing an individual's quality of life and preserving true continuity of person-centered aspects of care across a variety of settings."
                                          Ira Brock, MD, Director of Palliative Care, Dartmouth-Hitchcock Medical Center, author of Dying Well and The Four Things that Matter Most

                                          "I recommend this workbook to anyone and everyone who will have a say in how we will support people in their last days. The importance of this work cannot be overstated."
                                          Michael Smull, Chair, Learning Community for Person Centered Practices

                                          "People Planning Ahead brings together the best of theory and practice in person centered planning and end-of-life planning, and helps families and professionals face end-of-life experiences with thoughtfulness and hope rather than simply experiencing it as crisis and failure."
                                          The Rev. Bill Gaventa, Director, Community and Congregational Supports, The Elizabeth M. Boggs Center on Developmental Disabilities

                                           

                                          Year : 2009
                                          Author : Leigh Ann Creaney Kingsbury

                                            $19.95