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Leadership in IDD       

July 2025


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Leadership in IDD newsletter here.

Perspectives 

Commentary from the Field

Coleen Vanderbeek

Unseen and Undiagnosed: Bridging the Autism Diagnostic Gap for Females

Coleen Vanderbeek, PsyD

Licensed Professional Counselor

Autism Spectrum Disorder Certified Specialist


As autism rates continue to rise, early identification in females remains a serious challenge in the field of intellectual and developmental disabilities (IDD). Despite advancements in understanding autism spectrum disorder, current diagnostic tools still reflect predominantly male-centered criteria. As a result, females with the condition are under-diagnosed, misdiagnosed, or diagnosed later in life, thus missing a critical window for intervention that could greatly enhance their communication, learning, and social development outcomes.

 

Females on the spectrum often exhibit symptoms in subtler ways, including focused interests that align with social norms, or masking behaviors to make their challenges less visible. Such presentations are frequently misunderstood or dismissed by clinicians. To close this diagnostic gap, educators, pediatricians, and mental health professionals must be equipped to recognize the nuanced ways autism may present in females and consider gender differences during evaluation.

 

Raising awareness and utilizing appropriate screening practices are essential steps toward more equitable care. Early identification isn’t just about timely diagnosis, it’s about ensuring that all individuals, regardless of gender,receive the support they need to thrive.

 

In Memoriam

Rud Turnbull

H. Rutherford Turnbull, III, LLB, LLM, FAAIDD, President of the AAIDD Board 1985-1986 (1937-2025)

Memorial video produced by Jerry Smith, MBA; narrated by William Gaventa, MDiv, FAAIDD; and shown at the 2025 AAIDD Annual Conference. 

Notables 

 
Recent awards, accolades, appointments, and other honors

Sharon Gomez, FAAIDD, Featured in IDD Health Matters Podcast: Supports and Services for People with IDD 

Sharon Gomez shares her lifelong dedication to supporting individuals with IDD, tracing her journey from youth volunteerism to executive leadership roles. She discusses the impact of landmark legal cases like the Gary W. lawsuit on improving community-based care and highlights ongoing challenges in healthcare access for people with complex medical needs. In this podcast, she emphasizes the importance of properly trained healthcare professionals, the vital role of frontline staff, and the power of community in promoting equity and quality of life. The conversation also touches on the value of the AAIDD, professional growth within the field, and the human side of health advocacy.

 

A new book published in June 2025 by AAIDD, Direct Support Workforce Solutions: A Guidebook of Strategies for Individual and Collective Action Towards Workforce Stability was edited by Amy S. Hewitt, PhD, MSW, FAAIDD and Susan O’Nell. Chapter authors include the following.

  • Lynda Lahti Anderson, PhD, MPH
  • Julie Bershadsky, PhD
  • Valerie Bradley, MS, FAAIDD
  • Tawara Goode, MA
  • Sarah Hall, PhD, FAAIDD
  • Dorothy Hiersteiner, MPP, FAAIDD
  • Amy Hewitt, PhD, MSW, FAADD
  • James Houseworth, PhD
  • Barbara Kleist, MEd, JD, FAAIDD
  • Julie Kramme, MA
  • Carol Britton Laws, PhD, MSW, FAAIDD
  • Seunghee Lee
  • Joe Macbeth
  • Colleen McLaughlin, MEd, FAAIDD
  • Kelly Nye-Lengerman, PhD, MSW
  • Susan O'Nell
  • Sandra Pettingell, PhD
  • Megan Sanders, MSW, MPP
  • Jerry Smith, MBA
  • Renáta Tichá, PhD, FAAIDD

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