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Concurrent Session C

Tuesday, June 23, 2026

3:00 - 4:00 pm

C6. ISSUE BRIEF: GUARDIANSHIP AND DECISION-MAKING

What Do NCI Data Reveal About the Guardianship Status of People with IDD?
Valerie Bradley, MA, FAAIDD, Human Services Research Institute
Dorothy Hiersteiner, MPP, FAAIDD, Human Services Research Institute
Lindsay DuBois, PhD, Human Services Research Institute

Youth Voice, Youth Choice: Insights and Strategies from I DECIDE Georgia
Dana Lloyd, Georgia Advocacy Office
Darien Todd, Georgia State University

CYVYC: Strategies for Advancing Alternatives to Guardianship for Youth with IDD Through Responsive Technical Assistance Across 11 State Teams 
Morgan Whitlatch, JD, Center for Public Representation
Allison Hall, PhD, University of Massachusetts Boston
Melody Cooper, Self Advocates Becoming Empowered

Who Gets to Decide?: Physician Perspectives on Determining Healthcare Decision Making Capacity for Individuals with Intellectual and Developmental Disabilities 
Linsey Anderson, University of Nebraska Medical Center
Kayley Anderson, MPH, University of Nebraska College of Medicine

Guardianship & Guardianship Alternatives: Perspectives and Insights of Systemic Actors
Hope Sparks, PhD, Northwestern University
Kate Caldwell, PhD, Northwestern University 

Guardianship Experiences: People with Intellectual and Developmental Disabilities and Their Caregivers
Hope Sparks, PhD, Northwestern University

Data 'Without Us': Parents with Intellectual Disability, the Law, and Child Welfare Services and Outcomes
Jennifer Kendrick, MSSW, MFT, University of Louisville
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