1:00 – 4:00 pm
Alexandra Bonardi, MS, MHA, FAAIDD, Human Services Research Institute
Anna Brady, Utah State University
Katey Burke, University of Kansas
Jillian Caldwell, Oklahoma State University
Drew Egli, Oklahoma State University
Sarah Hall, PhD, Ashland University
Tamera Harper Shetron, Texas State University
Sheida Khamsi, University of Kansas
Sandra Magaña, PhD, University of Illinois at Chicago
Amanda Miller, University of Kansas
Ariel Schwartz, Boston University
Louis-Simon Maltais, Université du Québec à Trois-Rivières
I-Ting Hwang, Boston University
The purpose of the research colloquium is to provide AAIDD students and early career professionals an opportunity to explore ways to develop a research trajectory and an to present their research and network with leading IDD researchers and policymakers. Participants will receive feedback on how to translate their work into meaningful research, policy, and practice.
Colloquium presenters will present a review of literature, research questions, methods, and results. Following each presentation, Research Division members and AAIDD colloquium audience participants will engage in an brief open forum discussion to provide feedback to the participants on how the research fits into research, policy, and practice related to individuals with IDD. Discussion will also address sharing findings in multiple venues (i.e., peer-reviewed journals, practitioner-based journals, blogs, etc.).
1:00 – 4:00 pm
Dignity of Risk and of a Moral Voice: Carrying Forward the Impact of Bob Perske Bill Gaventa, MDiv, Summer Institute on Theology and Disability Quincy Abbot, Retired
Akijo Bonnie Shoultz, MA, Syracuse University
Stephen Greenspan, PhD, University of Connecticut
Bob Perske, who died late in 2016, was a unique leader in the field of intellectual and developmental disabilities. He started his career as a clergyman; as an institutional chaplain, he crafted some of the earliest writings of pastoral care. His subsequent move to the Omaha Arc and collaboration with Wolf Wolfensberger and colleagues is crystallized in his classic essay on “The Dignity of Risk” in Wolfensberger’s book, Normalization. His writing, speaking and consulting skills led to a series of books on community inclusion, a number of them illustrated by the black and white illustrations of his gifted artist wife, Martha—one of the first artists to capture the dignity and beauty of everyday lives of people with IDD, their families, and friends. Bob then moved into the justice and ethics issues of people with intellectual and developmental disabilities in prison, particularly those on death row, and spent almost all of his “retired” life advocating and educating in this area with humble yet forceful leadership that invited and called others into action.
1:00 - 4:00 pm
Exploring Crucial Issues in Health Care and IDD with the CDC
Peter Smith, MD, MA, University of Chicago Dedra Smith, MSSL, Almost Home Kids
Georgina Peacock, MD, Centers for Disease Control and Prevention
Nicole Dowling, PhD, Centers for Disease Control and Preventp
Jeanne Bertolli, PhD, MPH, Centers for Disease Control and Prevention
This session is a follow-up to the CDC pre-conference session held last year concerning the health of individuals with IDD. There will be three presentations, followed by a panel Q&A. The first presentation will describe current patterns of racial and ethnic health disparities within the population of individuals with IDD. The second will discuss the particular impact that infectious diseases, including Zika, have on this population. The third will present data from a model educational program for doctors-in-training that covers topics related to children with IDD.
1:00 - 4:00 pm
Managed Care gets a Social Life to Improve Health Outcomes
Patricia Nobbie, PhD, Anthem
Donna Meltzer, ED, National Association of Councils on Developmental Disabilities
Merrill Friedman, Anthem
Kenneth Smith, United Health Care
Sarah Lash, Anthem
This session will explore in some detail the increasing interest and attention to social determinants of health and their relationship to healthcare outcomes for individuals with IDD in a managed care environment. A diverse panel representing MCOs, quality experts and Councils on Developmental Disabilities will share ideas and solicit conversation on this topic in three parts; first, a review of the definitions and concept development in the area of social determinants of health and a review of the activities of DD Councils in this space; second, a discussion by representatives of the MCOs on initiatives in housing, employment and peer supports; and third, a review of the challenge of assessing the relationships between employment, housing, social supports and health outcomes, finishing with a charge to the field for more research in this area to build the necessary evidence base.
1:00 - 4:00 pm
Mindfulness and Acceptance-based Approaches to Improve the Health and Wellbeing of Individuals with IDD, their Families, and their Staff
Yona Lunsky, PhD, Centre for Addiction and Mental Health
Julie Brown, PhD, Licenses Independent Social Worker (LICSW)
In this workshop, we will review what is known about mindfulness and acceptance-based therapies, sometimes referred to as the third wave of behavior therapies, and how they can be applied to improve the health and well-being of individuals with IDD, their families, and staff who work within the sector. We will focus on the three most studied approaches (mindfulness based stress reduction, acceptance and commitment therapy, and dialectical behavior therapy). We will consider how elements from each of these approaches can be adapted and modified for the IDD population.
1:00 - 4:00 pm
Promoting Health and Wellness in Older Adults with Intellectual and Developmental Disabilities
Elizabeth Perkins, PhD, RNLD, FAAIDD, University of South Florida
Matt Holder, MD, MBA, Special Olympics, Inc.
Mindy Renfro, PhD, University of Montana
Yumi Shirai, PhD, University of Arizona
There is an increasing number of people with intellectual and developmental disabilities (IDD) who are aging. This session will highlight current research, evidence-based practices, established programs, and pilot programs underway that have been developed around the nation that support the successful aging of people with IDD. Following a primer on aging with IDD, presenters will discuss community based physical fitness programs, fall/mobility prevention programs, and enrichment programs that utilize art/creativity. The session will conclude with an interactive discussion and further sharing of available resources to aid providers to be more proactive to support the needs of this growing population.
Complimentary Pre-Con Sessions
Monday, June 26 from 4:30 - 5:30 pm
Reading & Signing with Dan Barry, author of "The Boys in the Bunkhouse"