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  • People Planning Ahead: Communicating Healthcare and E...

    People Planning Ahead provides a comprehensive and structured way to ensure that loved ones receive care respecting their wishes and conforming to their personal, cultural, and religious beliefs during times of chronic and terminal illness, or severe disability. The book and the accompanying CD-ROM are designed to capture detailed information on an individual;from basic health information and preferences on blood transfusions to the individual's traits and personality types. Successful application of information gathered through People Planning Ahead ensures that individuals proceed through care and end-of-life stages with minimum adversity and maximum dignity.

    Features

    • Provides a structured way for planners to gather and organize information on a person's values, goals, and life and turn it into a detailed life plan.
    • Contains guidelines on planning stages of lives of an illness.
    • Includes plain language definitions of such terms as living wills, advance directives, competency, and capacity as well as other insights into end-of-life issues.
    • Electronic questionnaires on accompanying CD-ROM make it easy to store and archive essential information.
    • Assists a person no matter where they may be on the wellness continuum, from healthy adults to those diagnosed with terminal illnesses. 
    • Comes with customized training workshops on end-of-life and person-centered planning.

    Benefits

    • Provides a structured way for planners to gather and organize information on a person's values, goals, and life and turn it into a detailed life plan.
    • Ensures that the clearest and most detailed portfolio of the individual is available for families and professionals to use as a reference for future contingencies.
    • Detailed planning forms on CD-ROM offer instructive and step-by-step examples on how to use information in real-life situations; electronic format makes it easy to store and archive information.
    • Based on the principles of Essential Lifestyle Planning, an approach focused on maintaining the independence and autonomy of a person by acquiring information about their life preferences

    Who Can Use This Book

    People Planning Ahead follows the person-centered model to help the family member or professional guide an individual on his or her own personal journey to consider and define what is most important. The manual is written for:

    • Disability professionals such as clinical coordinators or case managers in state agencies, institutions, or assisted living facilities
    • Geriatric care managers in hospitals, departments of aging, or independent homes
    • Social workers in hospices and other palliative care services
    • Family members

    Related Title

    End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities
    End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities presents a comprehensive framework under which professionals and families can make decisions that are thoughtful, ethical, and most importantly, respect the wishes of individuals with disabilities.

    Praise

    "In striving to protect an individual’s right to die well, the People Planning Ahead workbook results in a succinct summary of what makes each person unique and what matters to him or her most about living. As a practicing physician, I consider this manual to be an invaluable for assessing an individual's quality of life and preserving true continuity of person-centered aspects of care across a variety of settings."
    Ira Brock, MD, Director of Palliative Care, Dartmouth-Hitchcock Medical Center, author of Dying Well and The Four Things that Matter Most

    "I recommend this workbook to anyone and everyone who will have a say in how we will support people in their last days. The importance of this work cannot be overstated."
    Michael Smull, Chair, Learning Community for Person Centered Practices

    "People Planning Ahead brings together the best of theory and practice in person centered planning and end-of-life planning, and helps families and professionals face end-of-life experiences with thoughtfulness and hope rather than simply experiencing it as crisis and failure."
    The Rev. Bill Gaventa, Director, Community and Congregational Supports, The Elizabeth M. Boggs Center on Developmental Disabilities

     

    Year : 2009
    Author : Leigh Ann Creaney Kingsbury

      $19.95

    • Nuts & Bolts: Writing Outstanding Journal Articles (E...

      epubThis is an e-book version of Nuts & Bolts.  
      Click here for information about this book. 
      See our E Reader Tips for successful downloading.


      Year : 2012
      Author : AAIDD

        $15.00

      • User's Guide to Intellectual Disability: Definition, ...

        epubThis is an e-book version of the Intellectual Disability User's Guide.
        Click here for information about this book. 
        See our E Reader Tips for successful downloading.



        Year : 2012
        Author : AAIDD

          $29.95

        • National Goals and Research for People with Intellect...

          “The national goals book does something not done anywhere else. In one place, with a coherent structure, all the major issues impacting people with intellectual disabilities across the lifespan are address, by some of the leading researchers and practitioners in the field. This is an indispensable volume for students, researchers and practitioners.” Steve Eidelman, former Director of The Arc of the United States

          National Goals provides much needed guidance for the formulation of public policy and future action that will benefit people with intellectual disabilities in the United States and as such, this publication challenges us all to take those actions.” Nancy Thaler, Director for Quality Improvement Strategies for Home and Community Based Services, Centers for Medicare & Medicaid Services 

          “Many federal agencies and much federal legislation call on diverse stakeholders to work together on issues of importance to persons with disabilities. The National Goals book derived from the conference is an exceptional example of the wisdom of such expectations. The many federal and state government, professional, advocacy and academic agencies and organizations that supported this effort should take pride in the product of their commitments and contributions. Most importantly, in that same spirit, they should continue to work together to fulfill the recommendations and achieve the goals outlined in the book.” Robert (Bobby) Silverstein, Center for the Study and Advancement of Disability Policy 

          National Goals is America’s first effort to assess the status of the nation with regards to its fulfillment of research goals for persons with intellectual disabilities in areas such as education, positive behavior support, biomedical research, technology, transition planning, health supports, employment, self advocacy, aging, and community supports. The state of the knowledge and research contained in the book in areas such as education, positive behavior support, health supports, biomedical research, technology, and aging makes it an indispensable resource to anyone delivering quality care and services to citizens with intellectual disabilities. The book comes out of a groundbreaking, federal conference held in 2003. America’s prominent leaders in the intellectual disability met in Washington, DC to review what this nation knows and needs to learn specifically in the area of research to fulfill the promises made to persons with developmental disabilities. 

          In the words of the authors, research plays a central role in defining and achieving national goals for people with intellectual and developmental disabilities and their families. To be useful, this research must provide accessible, relevant information to people with disabilities and their families, professionals, the general public, and public officials. The result is a book that distills scientific research into comprehensible and accessible information so that key stake holders can align the reality of persons with intellectual and developmental disabilities with public policy—the clear and unambiguous promises made to them in the national legislation, court decisions, promises of the President, and other sources of national policy.

          Year : 2005
          Author : K. Charlie Lakin and Ann P. Turnbull, Eds.

            $39.95

          • Good Blood, Bad Blood: Science, Nature, and the Myth ...

            At the vortex of the American eugenics tragedy was the seemingly sordid tale of a “degenerate” family from rural New Jersey.Published in 1912, The Kallikak Family was a pseudoscientific treatise describing generations of illiterate, poor, and purportedly immoral Kallikak family members who were chronically unemployed, “feebleminded,” criminal, and, in general, perceived asthreats to “racial hygiene.” Psychologist Henry Herbert Goddard invented the pseudonym “Kallikak”—from the Greek words Kallos (beauty) and Kakos (bad)—to illustrate the eugenic belief in the role of nature and heredity as unalterable forces leading to degeneracy, and his tale of the contrasting fates of the disparate Kallikak ancestral lines reigned for decades as seemingly conclusive proof of the hereditary nature of intelligence, feeblemindedness, criminal behavior, and degeneracy. The starting point for Goddard’s moral tale was “Deborah Kallikak,” an inmate at his institution for the feebleminded.
            Incredibly, as revealed in detail for the first time in Good Blood, Bad Blood: Science, Nature, and the Myth of the Kallikaks, Goddard was completely wrong. No degenerate line descended from the purported Kallikak progenitor. There were only people—some of whom had resources and access to education, others of whom were poor, uneducated, and cast into the cauldron that was urban America at the dawn of the Industrial Age. The pseudonymous “Deborah Kallikak” became the poster child for societal fears regarding immigration, heredity, and racial integration, the flames of which were fanned by a select group of well-educated, upper class, American scientists marching under the banner of the new “science” of eugenics.
            In the 100 years since publication of The Kallikak Family, the woman Goddard called “Deborah” has remained in the shadows of history, known only by the name forced upon her. Using new source material, Good Blood, Bad Blood tells her story in its entirety—in dramatic, narrative style—for the first time. It is a landmark publication in disability studies, vital to understanding of both this specific American tragedy and the history of efforts to manipulate the human population.

            You may purchase the e-book version of Good Blood, Bad Blood by clicking here

            Year : 2012
            Author : J. David Smith and Michael L. Wehmeyer

              $34.95

            • A History and Sociology of the Willowbrook State Scho...

              epubThis is an e-book version of A History and Sociology of the Willowbrook State School.
              Click here for information about this book. 
              See our E Reader Tips for successful downloading.
              Year : 2013
              Author : David Goode, Darryl Hill, Jean Reiss and William Bronston

                $30.00

              • The Supervisor Training Curriculum Trainee Guide

                The Trainee Guide for the Supervisor Training Curriculum summarizes key points in the Curriculum and is meant as a note taking and reference tool.

                The Supervisor Training Curriculum instructs supervisors on ways in which they can direct and motivate staff working with people with intellectual disabilities. Based on three decades of applied research, each management strategy presented has been tested and proven to work in human services. This Curriculum organizes the role of supervision in human service settings into clear and convenient objectives and responsibilities for new managers.

                Related Product

                The Supervisor Training Curriculum
                The Supervisor Training Curriculum is meant for staff training personnel and upper-level managers in agencies providing supports and services to people with intellectual disabilities. The Supervisor Training Curriculum consists of PowerPoint® Trainer’s Slides; a perfect-bound training Curriculum that includes an introduction sheet, visual aides, and activity sheets and competency checks for each training module.

                Year : 2011
                Author : Carolyn W. Green Dennis H. Reid Marsha B. Parsons

                  $8.95

                • Intellectual Disability: Definition, Classification, ...

                  epubThis is an e-book version of Intellectual Disability.
                  Click here for information about this book. 
                  See our E Reader Tips for successful downloading.
                  Year : 2010
                  Author :

                    $90.00

                  • A History and Sociology of the Willowbrook State Scho...

                    This is a mobile version of A History and Sociology of the Willowbrook State School..
                    See
                     the book description and/or purchase a print edition by clicking here.
                    Year : 2013
                    Author : David Goode, Darryl Hill, Jean Reiss and William Bronston

                      $30.00

                    • Standing Together and Finding a Voice Apart: Advocati...

                      epubThis is an e-book version of Standing Together and Finding a Voice Apart: Advocating for Intellectual Disability Rights. Click here for information about this book. See our E Reader Tips for successful downloading.  
                      Year : 2015
                      Author : Amanda J. Rich

                        $24.00

                      • Supports Intensity Scale— Adult Version (SIS—A) ...

                        SIS—A has several “value-added” changes; however, the elements of the tool that contribute to the standard score and the standard score itself have not changed with this refreshed version. The new, 12-page interview form includes:

                        • New demographic items, which allow large-scale users to easily create reports on a variety of demographic variables. 
                        • A recorded subscale to allow more comfortable progression of sensitive topics during the interview. 
                        International purchases of SIS—A products cannot be made online. International customers interested in purchasing SIS—A products need to contact Ajith Mathew at ajith@aaidd.org. Do not place your order online.

                        Year : 2015
                        Author : James R. Thompson, Brian R. Bryant, Robert L. Schalock, Karrie A. Shogren, Marc J. Tassé, Michael L. Wehmeyer, Edward M. Campbell, Ellis M. (Pat) Craig, Carolyn Hughes, and David A. Rotholz

                          $50.00

                        • Supports Intensity Scale— Adult Version ...

                          SIS—A has several “value-added” changes; however, the elements of the tool that contribute to the standard score and the standard score itself have not changed with this refreshed version. The new, 12-page interview form includes:

                          • New demographic items, which allow large-scale users to easily create reports on a variety of demographic variables. 
                          • A recorded subscale to allow more comfortable progression of sensitive topics during the interview.
                          International purchases of SIS—A products cannot be made online. International customers interested in purchasing SIS—A products need to contact Ajith Mathew at ajith@aaidd.org. Do not place your order online.

                          Year : 2015
                          Author : James R. Thompson, Brian R. Bryant, Robert L. Schalock, Karrie A. Shogren, Marc J. Tassé, Michael L. Wehmeyer, Edward M. Campbell, Ellis M. (Pat) Craig, Carolyn Hughes, and David A. Rotholz

                            $190.00

                          • Way Leads on to Way: Paths to Employment for People w...


                            epubThis is an e-book version of Way Leads on to Way: Paths to Employment for People with Intellectual Disabilities.
                            Click here for information about this book. 
                            See our E Reader Tips for successful downloading.
                            Year : 2015
                            Author : AAIDD

                              $35.00

                            • User's Guide to Intellectual Disability: Definition, ...

                              By Robert L. Schalock, PhD; Sharon A. Borthwick-Duffy PhD; Valerie J. Bradley, MA; Wil H.E. Buntinx, PhD; David L. Coulter, MD; Ellis M. (Pat) Craig, PhD; Sharon C. Gomez, FAAIDD; Yves Lachapelle, PhD; Ruth Luckasson, JD; Alya Reeve, MD; Karrie A. Shogren, PhD; Martha E. Snell, PhD; Scott Spreat, EdD; Marc J. Tassé, PhD; James R. Thompson, PhD; Miguel A. Verdugo-Alonso, PhD; Michael L. Wehmeyer, PhD; and Mark H. Yeager, PhD

                              This practical User's Guide on the 2010 AAIDD Intellectual Disability: Definition, Classification, and Systems of Supports manual informs clinicians, educators, policy makers, and program managers how to implement the various components of the AAIDD definition system in their specific job settings. The authors discuss the contemporary relevance of the supports-based AAIDD definition in the context of issues ranging from special education practices and IDEA mandates, to diagnosing individuals with higher IQ and conducting retroactive diagnoses. Policy makers and program managers will benefit from discussions on how the supports paradigm can improve quality outcomes, and how the current system incorporates the consensus in the field to utilize a supportsbased approach.

                              You may purchase the e-book version of the User's Guide by clicking here

                              Related Title

                              Intellectual Disability: Definition, Classification, and Systems of Supports (11th Edition) 
                              This manual contains the most current and authoritative information and knowledge on intellectual disability, including best practice guidelines on diagnosing and classifying intellectual disability and developing a system of supports for people living with intellectual disability.

                              Year : 2012
                              Author :

                                $29.95

                              • Negotiating the Social Borderlands: Portraits of Youn...

                                Negotiating the Social Borderlands: Portraits of Young People with Disabilities and Their Struggles for Positive Relationships provides readers with narratives of the lives of three young people with significant disabilities.
                                The author uses portraiture to narrate the stories of three young people and to capture the myriad dimensions of each unique individual. These portraits expose a balance between empirical description and aesthetic expression and provide a singular view into the nuances and complexities of each young person’s life, while depicting their unique social contexts and how they fit within those milieux.
                                Never losing sight of the dimensions of the selves of these notable young people and the contexts in which they exist, the author presents the qualitative techniques of inquiry she used to examine the complexities involved in the co-constructions of meaning among the young people and their communication partners. Without wavering, she explores their deep relationships and the contexts where positive reciprocal relationships developed between young people with disabilities and nondisabled people and how these relationships evolved from the perspectives of the participants. 
                                Negotiating the Social Borderlands, an unapologeticpresentation of a remarkable set of portrait narratives, is written for a broad audience and, thus, offers an inherently complex and sensitive portrayal of three personal stories in which a variety of contextualized issues can be examined and discussed in light of each readers’ practices, policies, and perspectives.

                                You may purchase the e-book version of Negotiating the Social Borderlands by clicking here
                                Year : 2013
                                Author : Janet Sauer

                                  $30.00

                                • Supports Intensity Scale— Adult Version (SIS—A) ...

                                  The SIS—A publications include the printed manual and interview form. SIS—A has several “value-added” changes; however, the elements of the tool that contribute to the standard score and the standard score itself have not changed with this refreshed version. SIS—A features include:

                                  • A 12-page interview form that includes new demographic items, which allow
                                  large-scale users to easily create reports on a variety of demographic variables.
                                  • A reordered subscale to allow a more comfortable progression of sensitive topics
                                  during the interview.
                                  • An updated user’s manual that incorporates new information and lessons learned
                                  since its original publication in 2004.

                                  International purchases of SIS—A products cannot be made online. International customers interested in purchasing SIS—A products need to contact Ajith Mathew at ajith@aaidd.org. Do not place your order online.

                                  Year : 2015
                                  Author : James R. Thompson, Brian R. Bryant, Robert L. Schalock, Karrie A. Shogren, Marc J. Tassé, Michael L. Wehmeyer, Edward M. Campbell, Ellis M. (Pat) Craig, Carolyn Hughes, and David A. Rotholz

                                    $155.00

                                  • Clinical Judgment, Second Edition

                                    In 2005, AAIDD published the first edition of Clinical Judgment to assist clinicians in making decisions or recommendations that were of high quality, valid, and precise. This need was becoming increasingly important as the field of intellectual disability was moving to a community-based service delivery system in which the concepts of equity, inclusion, self-determination, and empowerment were merging with the supports paradigm and the self-advocacy movement. Thus, clinicians were being asked to formulate high-stakes decisions and recommendations that frequently required a level of competency that extended beyond their formal training. In this second edition, the authors maintain their focus on the use of clinical judgment in situations involving diagnosis, classification, and planning supports. In addition they have synthesized evaluative input from colleagues and literature-based critiques and have extended their analysis and evaluation of the role of clinical judgment in decision making. 

                                    You may purchase the e-book version of Clinical Judgment, Second Edition by clicking here




                                    Year : 2014
                                    Author : Robert L. Schalock and Ruth Luckasson

                                      $30.00

                                    • Clinical Judgment, Second Edition E Pub

                                      epubThis is an e-book version of Clinical Judgment, Second Edition
                                      Click here for information about this book. 
                                      See our E Reader Tips for successful downloading.
                                      Year : 2014
                                      Author : Robert L. Schalock and Ruth Luckasson

                                        $30.00

                                      • The Death Penalty and Intellectual Disability (E-pub)

                                        epubThis is an e-book version of The Death Penalty and Intellectual Disability.
                                        Click here for information about this book. 
                                        See our E Reader Tips for successful downloading.
                                        Year : 2015
                                        Author : Edited by Edward A. Polloway

                                          $39.95

                                        • Trauma-Informed Behavioral Interventions: What Works ...

                                          epubThis is an e-book version of Trauma-Informed Behavioral Interventions. 
                                          Click here for information about this book. 
                                          See our E Reader Tips for successful downloading.



                                          Year : 2012
                                          Author : Karyn Harvey

                                            $24.99