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DTSTART:20251102T020000
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DESCRIPTION:\n\n\n\n\n\n\n\nContent\nThis presentation will highlight the r
 esearch methods used in two recent studies that illustrate distinct and co
 mplementary approaches to conducting paired interviews. The first approach
  is featured in an article published in Intellectual and Developmental Dis
 abilities (IDD) entitled &ldquo\;Reciprocity and Social Capital in Sibling
  Relationships of People with Disabilities.&rdquo\; The second approach\, 
 detailed in an article published in Qualitative Research on &ldquo\;Dyadic
  Interviewing: A Technique Valuing Interdependence in Interviews with Indi
 viduals with Intellectual Disabilities\,&rdquo\; is used to address the qu
 estions raised in an article published in IDD entitled\, &ldquo\;The Poten
 tial of Social Entrepreneurship: Conceptual Tools for Applying Theory to P
 olicy and Practice.&rdquo\; &nbsp\;\n\nPresenters will begin by summarizin
 g their studies\, its findings\, and key methodological gaps encountered i
 n their research. Key issues around including the perspectives of people w
 ith Intellectual and Developmental Disabilities and contextualizing the ro
 le of support persons. The inclusion of participants of color while also a
 ddressing frequent gender imbalance in studies in this area will be discus
 sed. Presenters will pose strategies for researchers who are interested in
  including the voices of people with I/DD in research. Finally\, they will
  provide lessons learned on what did and did not work well in terms of inc
 lusive research strategies.\n\n\nPresenters\nJohn Kramer\, PhD\, works wit
 h the research team at the Institute for Community Inclusion at the Univer
 sity of Massachusetts at Boston on systems change\, employment issues for 
 people with disabilities\, and family roles in supporting employment. He w
 as a 2011-2012 Switzer Research Fellow sponsored by the National Institute
  on Disability and Rehabilitation Research in the Department of Education.
  For the fellowship\, his work focuses on the involvement of siblings in s
 upporting and maintaining employment for people with disabilities. He hold
 s a PhD in Disability Studies\, with his dissertation research looking at 
 aging issues for siblings and people with disabilities. John co-founded th
 e Sibling Leadership Network\, Massachusetts Sibling Support Network\, and
  Supporting Illinois Brothers and Sister\n\n\n\n\nTamar Heller\, PhD\, is 
 Head of the Department of Disability and Human Development\, University of
  Illinois at Chicago (UIC) and director of its University Center of Excell
 ence in Developmental Disabilities for the State of Illinois. She also dir
 ects the Rehabilitation Research and Training Center on Developmental Disa
 bilities and Health\, the Institute&rsquo\;s Family Clinics\, and the TAP 
 autism training program. She has active projects on family support and hea
 lth promotion interventions for individuals with disabilities. Dr. Heller 
 has written over 200 publications and presented numerous papers at major c
 onferences on family support interventions and policies\, self-determinati
 on\, health promotion\, and aging of people with disabilities. She has wri
 tten or co-edited 5 books and has edited special issues of Technology and 
 Disability\, American Journal on Intellectual and Developmental Disabiliti
 es\, Journal of Policy and Practice in Intellectual Disabilities\, and Fam
 ily Relations. She is past President of the board of the Association of Un
 iversity Centers on Disabilities. \n\nKate Caldwell\, PhD\, is a Postdocto
 ral Research Associate in the Department of Disability and Human Developme
 nt at the University of Illinois at Chicago (UIC) where she works on the L
 igas Implementation Evaluation project and the ADA Knowledge Translation p
 roject. Her research in the area of employment and social policy has focus
 ed on the experiences of people with disabilities\, and I/DD in particular
 \, in entrepreneurship. For two and a half years she served as the Editori
 al Coordinator for the AAIDD journal\, Intellectual and Developmental Disa
 bilities. She is an RSA-USA fellow and the co-organizer of the Society for
  Disability Studies special interest group on Work Employment &amp\; Socie
 ty.\n\n\n\n\n\nThis presentation was hosted by the AAIDD Research Division
 . \n
DTEND:20141029T190000Z
DTSTAMP:20260909T131344Z
DTSTART:20141029T180000Z
LOCATION:
SEQUENCE:0
SUMMARY:Illustrating Inclusive Interview Methodology in Research
UID:RFCALITEM639245420241501765
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 br />\n<strong>Content</strong><br />\nThis presentation will highlight th
 e research methods used in two recent studies that illustrate distinct and
  complementary approaches to conducting paired interviews. The first appro
 ach is featured in an article published in Intellectual and Developmental 
 Disabilities (IDD) entitled &ldquo\;Reciprocity and Social Capital in Sibl
 ing Relationships of People with Disabilities.&rdquo\; The second approach
 \, detailed in an article published in Qualitative Research on &ldquo\;Dya
 dic Interviewing: A Technique Valuing Interdependence in Interviews with I
 ndividuals with Intellectual Disabilities\,&rdquo\; is used to address the
  questions raised in an article published in IDD entitled\, &ldquo\;The Po
 tential of Social Entrepreneurship: Conceptual Tools for Applying Theory t
 o Policy and Practice.&rdquo\; &nbsp\;<br />\n<br />\nPresenters will begi
 n by summarizing their studies\, its findings\, and key methodological gap
 s encountered in their research. Key issues around including the perspecti
 ves of people with Intellectual and Developmental Disabilities and context
 ualizing the role of support persons. The inclusion of participants of col
 or while also addressing frequent gender imbalance in studies in this area
  will be discussed. Presenters will pose strategies for researchers who ar
 e interested in including the voices of people with I/DD in research. Fina
 lly\, they will provide lessons learned on what did and did not work well 
 in terms of inclusive research strategies.<br />\n<br />\n<strong><br />\n
 Presenters</strong><br />\n<em>John Kramer\, PhD</em>\, works with the res
 earch team at the Institute for Community Inclusion at the University of M
 assachusetts at Boston on systems change\, employment issues for people wi
 th disabilities\, and family roles in supporting employment. He was a 2011
 -2012 Switzer Research Fellow sponsored by the National Institute on Disab
 ility and Rehabilitation Research in the Department of Education. For the 
 fellowship\, his work focuses on the involvement of siblings in supporting
  and maintaining employment for people with disabilities. He holds a PhD i
 n Disability Studies\, with his dissertation research looking at aging iss
 ues for siblings and people with disabilities. John co-founded the Sibling
  Leadership Network\, Massachusetts Sibling Support Network\, and Supporti
 ng Illinois Brothers and Sister<br />\n<a href="https://aaidd.org/docs/def
 ault-source/board-minutes/2014-10-29_aaidd-rd_kramer.pdf?sfvrsn=7ef4e395_0
 "><br />\n</a><br />\n<br />\n<br />\n<em>Tamar Heller\, PhD</em>\, is Hea
 d of the Department of Disability and Human Development\, University of Il
 linois at Chicago (UIC) and director of its University Center of Excellenc
 e in Developmental Disabilities for the State of Illinois. She also direct
 s the Rehabilitation Research and Training Center on Developmental Disabil
 ities and Health\, the Institute&rsquo\;s Family Clinics\, and the TAP aut
 ism training program. She has active projects on family support and health
  promotion interventions for individuals with disabilities. Dr. Heller has
  written over 200 publications and presented numerous papers at major conf
 erences on family support interventions and policies\, self-determination\
 , health promotion\, and aging of people with disabilities. She has writte
 n or co-edited 5 books and has edited special issues of Technology and Dis
 ability\, American Journal on Intellectual and Developmental Disabilities\
 , Journal of Policy and Practice in Intellectual Disabilities\, and Family
  Relations. She is past President of the board of the Association of Unive
 rsity Centers on Disabilities. <br />\n<br />\n<em>Kate Caldwell\, PhD</em
 >\, is a Postdoctoral Research Associate in the Department of Disability a
 nd Human Development at the University of Illinois at Chicago (UIC) where 
 she works on the Ligas Implementation Evaluation project and the ADA Knowl
 edge Translation project. Her research in the area of employment and socia
 l policy has focused on the experiences of people with disabilities\, and 
 I/DD in particular\, in entrepreneurship. For two and a half years she ser
 ved as the Editorial Coordinator for the AAIDD journal\, Intellectual and 
 Developmental Disabilities. She is an RSA-USA fellow and the co-organizer 
 of the Society for Disability Studies special interest group on Work Emplo
 yment &amp\; Society.<br />\n<br />\n<br />\n<br />\n<br />\n<br />\n<em>T
 his presentation was hosted by the AAIDD Research Division. </em><br />\n<
 br />
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